|The week he was diagnosed|
We are now 21 months into the journey. My dad barely survived one induction of chemotherapy but was able to get into remission. He was never able to find a suitable match for the bone marrow transplant. He continued to have a low dosage of chemo once a month for 5 days called Decitabine and combined it with supplements he takes daily. At the end of October, he began to show the first signs of weakness as his platelet count began to fall. After one more dose of Decitabine in November, his counts plummetted, and by December, his white blood cells were so low that the doctor gave him days to weeks of life.
We rejoiced with every passing day. We savored every moment of the Christmas season. Day by day, week by week, month by month, we did not know if we would have one more Valentine's Day, one more celebration of my mom's birthday, one more visit with his sister during Spring Break... Last month they celebrated 35 years of marriage. My mother never expected to spend another anniversary with him. And here we are three-fourths the way through September.
Since December, things have not been easy. He struggled through three serious infections. One infection which caused some heart complications along with the onset of diabetes. Blood and platelet transfusions also occur once a week. Within the last few weeks he has had a decrease in appetite and has been losing about 2 pounds a week. He has also experienced insomnia. My mom has waken to him sitting alone in the front room, staring out the window. He says he has been speaking with the Lord.
Looking forward, he hopes to spend one more Christmas with us. We are so grateful for the time that we have had with him and will be so appreciative for what we will continue to have. Much love and appreciation to those who have walked with us through this journey.
If you have been diagnosed with Acute Myeloid Leukemia, please feel free to contact me through the comments. I remember combing the cyberworld in hopes of finding another person who could understand what we were going through. We have been blessed with the relief of walking with others who are fighting the same battle.